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Anime Addict's blog: "Serious Stuff"

created on 05/23/2007  |  http://fubar.com/serious-stuff/b85285
1. The June Christine Lembo Foundation is a registered 501(c)(3) non- profit organization. All donations are dedicated to raising awareness of Lam and funding research. It is essential to raise awareness in both the medical/scientific as well as the lay communities in order to encourage the interest required to further research. E.I.N.# 03-0613422.
HOPE4 LAM on MYSPACE
From June Lembo: My name is June. I'm 35 years old and I was recently diagnosed with a rare,progressive,fatal lung disease I had never ever heard of. in fact, not many people have. In September of 2006 After a catscan of my chest I was diagnosed with the beginning of Emphesema.It was misdiagnosed as it often is. The disease I have is called Lymphangioleiomyomatosis "Lam" and as of yet there is no cure Lymphangioleiomyomatosis is pronounced lim-fan-gee-o-ly-o-my-o-ma-to-sis. "Lymph" and "angio" refer to the lymph and blood vessels, respectively. "Leiomy" means smooth muscle, and "oma" is a tumor. The last part "tosis" refers to a disease condition. I have 25-30 cysts in my lungs. At times I get very tired. LAM is a metastatic disease affecting the lungs, the kidneys, the lymphatic system, and at times, the brain. LAM is fatal in the lungs as thin-walled cysts progressively destroy healthy lung tissue. There is no effective treatment and no cure. It kills women from all races, class backgrounds and countries by suffocating them to death. The June Christine Lembo Lam Foundation is committed to funding science to find a cure,educating the medical and lay communities and raising awareness of this disease that so few physicians have heard of. and making sure every physician knows what Lam is. Lam is often misdiagnosed as Asthma,Chronic Bronchitis,Emphysema or even worse it goes undiagnosed. The Life expectancy for someone with Lam is 8-10 years. Time is running out.for me and other woman with Lam. That can change with your help. I am not a movie star I never went to Princeton. I'm a very real person pleading for a real cure. Heres how you can help this, and the other following causes: Please give what you can to: The June Christine Lembo Lam Foundation P.O Box 3367 Pawtucket,Rhode Island 02861

2. Chronic Fatigue Research:
CFIDS.org

3. All Chronic Illness Support:

MY CHRONIC ILLNESS.com

ButYouDontLookSick.com

MANY THANKS! J.

"I am only one, but still I am one. I cannot do everything, but still I can do something; And because I cannot do everything I will not refuse to do the something that I can do." ~~Helen Keller

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