This was taken from Lilli's CarePage
Hi everyone it's Vicky this time,
As I sit here updating this page for Lillianna she is getting a highda scan done. I am nervous because they inject dye into her tiny little body. Yesterday was a very trying day. She kept desatting all day and we thought it might be from her reflux but she wasn't handling it well at all. We tried inclining her bed more,putting more blankets under her head. Nothing seemed to help only when I held her while standing up with her little head on my chest did she have great vitals. Well then at five p.m feeding I nursed her and about 10 minutes later she let out this sound like she was throwing up and it was a mucus ball. Then her stats seemed to even back out. I watched her for about 20 minutes very carefully but she did well. According to the nurse she had a good night. But we have had to reduce the amount of times she gets to nipple feed ( bottle or breast) back down to four times a day. Waiting on all her labs and test result to come back. She is seeing the gi dr again soon. Hopefully today , so we can give her something for her reflux. And I am nervous about the results from this scan they are doing. She is maintaining her temp alot better now and is very alert at times usually around feedings when mommy is always there 11a.m. and 2 p.m. She is such a good girl hardly cries at all right now she fusses but not too much. I wish I had more to report but really don't. I am waiting on the results of her last cranial scan but so far her head measurements are still normal. One of us will update again soon to tell you the results and progress. Oh and Happy Valentines Day! Hug your babies for me and hugs to all the adults too. We Love you all !
Love Vicky
