My son is still hanging in...A day for him is very hard, The first thing he does in the mornings is to spend his first 2 hours vomiting...He has done this for so long...Sometimes it is hard to get him to focus on the good things because he feels as if he is being punished...He says it is not fair and sometimes he just wishes for a end...Was really hard when he was a teen as he felt as if he were a freak...We have been through so much but we still hang in...We have been working on getting ready for this surgery for over a year now and it has been a very long year...First we were looking for a donor list then we were told we had to have a live kidney...This surgery is expermental as it has never been attempted but it is a last resort for us and if it works we have found a cure for something that kills children...Please pray that it is a success...